skip to main content

Listen

Read

Watch

Schedules

Programs

Events

Give

Account

Donation Heart Ribbon

Avatar for waywardtom

( waywardtom )

Comments made by waywardtom

Orphan Diseases Look For Parents With A Cure

most excellent article and interview with Maureen Cavanaugh on These Days.

have a rare condition myself, introcranial hypotension, caused by chronic cerebrospinal fluid leak in conjunction with ehlers-danlos syndrome. i found that eating sorbitol (also a sugar, found in prunes for example) reverses the osmotic pressure in the blood brain barrier (arachnoid of the meninges) thus positively affecting the introcranial hypotension and thereby reducing pain (headache).

March 9, 2011 at 9:44 a.m. ( | suggest removal )