Caregiver Sick About IHSS Cuts
Tuesday, September 29, 2009
SAN DIEGO Next month, thousands of San Diegans suffering from an array of debilitating conditions -- from blindness to mental impairment -- will lose help in bathing themselves, cooking or taking their medication. Governor Schwarzenegger cut In Home Supportive Services to deal with the state's budget crisis.
"Gin, Can you eat a little bit faster? She says opo, opo -- means yes, she doesn't want to be prodded."
But if Nicanora Montenegro didn't prod her younger sister Gin, the day would never start. Gin is 40 and developmentally challenged. She has the mental capacity of a 4-year-old and needs help with just about everything.
Nicanora's mother Felisa is 77. She has heart disease and diabetes. She moves around slowly with the aid of a walker. And she also needs help.
So at 5 o'clock every morning, Nicanora rises from a daybed in the dining room, bathes her sister and then her mother. She dresses them. She cooks for them, helps them eat, takes them to daycare and medical appointments. At night, she watches over them, especially her sister Gin.
"She sneaks out. She opens the doors in the garage and went into the backyard door and she was rummaging the trashcan and going into empty soda cans and trying to drink them. That's why I sleep. I wake up. I sleep I wake up."
How does this native Filipina with a master's degree in industrial psychology describe her life?
Nicanora says she has no choice but to take care of her family.
"My mom is my mom. My sister is my sister. They are my blood. For me my family is very important," she says.
Nicanora does get some money from the state for her care-giving. She is one of 23,000 providers within the In Home Supportive Services program in San Diego County. She receives $1,500 per month for her work. After deductions, she's left with about $900. Nicanora supplements the paycheck by working part-time as a life insurance agent.
"That money that is being given to me is being used to buy food for them, for us,” she says. “That is not even enough for food, the payment of the utilities, how about the car, how about the gasoline, how about all the expenses?”
One of those expenses is medical. Nicanora herself is a diabetic with hypertension. Even though she has health insurance, she's skipping doctor's appointments. She can't afford the co-pay and she can't afford the $200 for her medication.
"Actually this morning, I checked my blood sugar. It's 268 already. All I can do is drink water and reduce food intake until it goes down by itself. That's the only thing I can do."
And things are about to get worse. With Governor Schwarzenegger's $270 million cut to In Home Supportive Services, Nicanora will lose all the money she receives to take care of her mother and sister.
"What will happen to them? They will rot. They will smell and they will not be able to eat properly. Who's going to help them clean the house? Who's going to help them bathe? That will be very difficult. With this situation, I'm already financially burdened and if that is removed, what will happen? What will I do?"
Liselda Lopez is with the California Department of Social Services, which oversees IHSS.
"We're hoping as I mentioned earlier that individuals will work with their communities, with their churches, with their families to figure out a way for the services to continue to be provided in a revised way so if someone can come and help them do the dishes, then that way they can stay in their own home. That's the preference."
But Nicanora believes many of the people affected by the cuts will eventually be placed in institutions which would cost the state much more money.
In the room next door, Nicanora's sister sits on a sofa, repeatedly thumping on a pad as she mumbles. Nearby their mother Felisa rests on a bed and worries.
"I can't do nothing. I cannot cook. It's very hard for me if nobody helps me."