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Lawmaker Pushes For Additional Test In Newborn Screenings

One state lawmaker says permanently adding an additional test to newborn screenings could save lives and save the state money. Assemblyman Richard Pan is a pediatrician. The Democrats wants to require testing for Severe Combined Immuno-deficiency. It’s commonly known as SCID or "Bubble Boy disease."

Anne Marie Mullen’s son Shane died of the illness when he was only a few months old and doctors didn’t know what was wrong. But she had another child, Kyle, who was screened for SCID at birth and treated right away with a bone marrow transplant.

"Now Kyle is this healthy, happy 3 1/2-year-old boy, so It’s our dream that no other babies is going to die of this disease when it’s obvious it can be cured," Mullen said.

When a child has SCID, his or her immune system can’t fight off infections.

Since August, California newborns have been screened for SCID as part of a pilot program. Assemblyman Pan wants to make it permanent.

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